AboutFace International | Advocates on behalf of those touched by facial differences

Web Links

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Ability OnLine	www.ablelink.org
Acoustic Neuroma Association of Canada	www.anac.ca
Aden-Cyst Foundation	www.paonline.com\knippd\acc
American Cleft Palate Association	www.acpa-cpf.org
Anomalie Vasculaire (French Web site)	www.anomalievasculaire.org
Apert International	www.apert-international.org
Apert Support Group & Information Network (New Zealand)	www.apert.org
Apert Support Group of Argentina	www.geocities.com/apertarg
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Bacel Cell Carcinoma Nevus Syndrome (also known as Gorlin Syndrome)	www.bccns.org
Belgium Association of Congenital Defects	www.vaga.be
Bells Palsy Association	www.bellspalsy.org.uk
Birth Defects Research for Children	www.birthdefects.org
Burns Support Groups Database	www.burnsupportgroupsdatabase.com
Birthmarks	www.birthmarks.com
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Canada Safety Council	www.safety-council.org
Canadian Association for Community Care	www.cacc-acssc.com
Canadian Association for Young Children	www.cayc.ca
Canadian Burn Foundation	www.canadianburnfoundation.org
Canadian Cancer Society	www.cancer.ca
Canadian Institute of Child Health	www.cich.ca
Canadian Pediatric Society	www.cps.ca
Canadian Society of Ectodermal Dysplasia	www.edscanada.org
Changing Faces	www.changingfaces.co.uk
Children’s Craniofacial Association	www.ccakids.com
Cleft Palate Foundation	www.cleftline.org
Cleft Lip and Palate Association of Ireland	www.cleft.ie
Cleft Lip and Palate Foundation of UK	www.clapa.com
CORD – Canadian Organization for Rare Disorders	www.raredisorders.ca
Craniosynostosis And Positional Plagiocephaly Support	www.cappskids.org
Craniofacial Foundation of Arizona	www.azcranio.com
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DEBRA - (Dystropic Epidermolysis Bullosa Research Association of America)	www.debra.org
Disability Resources	www.disabilityresources.org
Dr. Froggie’s Favorite Links	www.froggie.org
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FACES	www.faces-cranio.org
Family Village	www.familyvillage.wisc.edu
Foundation for Nager Miller Syndrome	www.fnms.net
Friend’s Health Connection	www.48friend.org
Friendly Faces	www.friendlyfaces.org
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Genetic Alliance	www.geneticalliance.org
Gorlin Syndrome	www.bccns.org
Goldenhar Syndrome	www.goldenharsyndrome.org
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Headlines Craniofacial Support	www.headlines.org.uk
Hemangioma Treatment Foundation	www.hemangiomatreatment.org
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Kinderstart	www.kinderstart.com
Kabuki Syndrome	www.kabukisyndrome.com
Kids Health	www.kidshealth.com
Klippel Trenaunay Syndrome	www.ktfoundation.com
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Langer-Giedion Syndrome Learning Disabilities Association of Canada	www.ldac-taac.ca
Let’s Face it USA	www.faceit.org
Let’s Face it UK	www.letsfaceit.force9.co.uk
Lymphovenous Canada	www.lymphovenous-canada.ca
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Making Faces	www.makingfaces.ca
Moebius Syndrome Foundation	www.ciaccess.com/moebius
Moebius Foundation Italia	www.moebius-italia.it
MUMS National Parent to Parent Network	www.netnet.net/mums
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National Neurofibromatosis	www.nf.org
Nevus Outreach	www.nevus.org
National Organization of Vascular Anomalies (Includes hemangioma, port wine)	www.novanews.org
National Vitiligo Foundation	www.nvfi.org
NORD (National Organization for Rare Disorders)	www.nord-rdb.com
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Ontario Coalition for Better Child Care	www.childcareontario.org
Operation Smile	www.operationsmile.org
Operation Smile Because we Care	www.operationsmile.net
Oral Cancer Support	www.oralcancer.org
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Parenthood	www.parenthoodweb.com
Pierre Robin Network	www.pierrerobin.org
Pierre Robin Support UK	www.pierrerobinuk.org
Syndrome de Pierre Robin (French site)	http://tremplin.free.fr/
Phoenix Society	www.phoenix-society.org
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Romberg’s Connection	www.geocities.com/hotsprings/1018
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Safe Kids Canada	www.sickkids.on.ca/safekidscanada
Scleroderma Society of Canada	www.scleroderma.ca
Stickler Involved People	www.sticklers.org
Sturge Weber Foundation	www.sturge-weber.com
Sturge-Weber Foundation Canada	www.sturge-weber.ca
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Today’s Parent	www.todaysparent.com
TOMA Foundation for Burned Children	www.fondtomafound.org
Transforming Faces Worldwide	www.transformingfaces.org
Treacher Collins Connection	www.tcconnection.org
Treacher Collins Family Support Group	www.treachercollins.net
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Vascular Birthmark Foundation (includes Hemangioma, port wine, venous malformations)	www.birthmark.org
Vascular Birthmark Foundation- Europe	www.vbfeurope.org
Velo-Cardio-Facial Syndrome Education Society	www.vcfsef.org
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Wide Smiles	www.widesmiles.org
World Burn Foundation	www.burnfoundation.com
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